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Chemo Schedule

The first chart helped us chart the chemo schedule.

The chemo section contained paperwork on each of the three chemotherapy drugs that they used to treat Caramon’s cancer. This chart shows a place for a date, the chemo given, to list side effects Caramon experienced, what anti-emetics he took (read drugs so he wouldn’t puke, etc), and comments.

For example, I quickly learned that Zofran was my best friend. That drug is a God-send.

For the record, Caramon received chemo on his brother’s 3rd birthday. Poor kids. And again two days before his own fifth birthday. That was a particularly crummy year. “Happy Birthday, here’s your Zofran!”

Blood Counts

A Blood Count chart came next.

Next up came blood counts. Your world revolves around blood counts. This tells you how well a patient can battle disease. So you need to know your White Blood Cell count (WBC) and your ANC (has to do with certain white blood cells).  The drugs could also affect other parts of your blood you needed to track. Caramon ended up needing hemoglobin several times.

**For the record, a normal person’s White Blood Cell count should be between 4,000 and 10,000.  When ANC is concerned, we wanted Caramon to be above 500 in order to have a good chance of fighting infection.  The doctors considered Caramon’s chemotherapy “light”, so he was OK in these regards. **

Daily Medicine Log

The Daily Medicine Long

The Daily Medicine Log let us track what antibiotics, blood pressure meds, and etc Caramon needed to take. Take a look at those times. This was Lady Ozma playing nurse, not being in the hospital. I’m not kidding when I said I didn’t sleep.

Very few medications were pills. Most involved mixing drugs at my dining room table each day and then infusing over 15 -60 minutes. You can see why the charting is important.  I also received a chart for RX and supply reports, but I tended to just hole-punch the invoice sheets in.  Only the first few things did I need to go out and purchase, everything else came via special delivery.

My Child's Health Diary

My Child’s Health Diary

This chart seemed a bit repetitive, but I liked the extra detailing it allowed. For example, one of the drugs tends to constipate a person. Yes, I had to track that. Fun for me, right? I did make sure to chart things like “Threw up 5 hours after chemo” again. I also recorded the drug that turned all fluids orange.

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