Tags
cancer, caramon, diy, healthcare, lady ozma, notebook, organization, pediatric cancer, wilms' tumor
Yes, this is September 2001. We went home after 21 days on September 12. Now you know where I was on 9-11.
This just served as a good way to track tests, chemo, surgeries, and etc. This is your life. If you weren’t good with calendars before, that would change.
I’ve never seen so many scans in my life.
X-rays, CAT Scans, MRI’s, EKG’s, you name it. It was nice to have a place to chart results. I had a pre-rad page and a post-rad page. Just seemed like the thing to do at the time.
We could chart our visits here.
The hospital becomes the home away from home. Here you can see when our life changed. You name it, it was on here. See the whole page below:
You can see the full page for the Hospital Visit page here
Some things I used a lot. We ended up practically living at the hospital from August until Thanksgiving, so I didn’t really use the hospital visits page. Bad Mommy.
The notebook became a vital resource in my life. Thank you to the great staff of Children’s Hospital for providing it.
I hope you never have need of something like this, but if you do… maybe this helps. I actually think some of these ideas would be great for tracking your family’s allergies, shots, statistics, injuries, and so forth!
–Lady O
P.S. April marks 9 years cancer-free! Huzzah!
Lady Ozma's Journey 
::fireworks and applause:: YAY for 9 years cancer-free!!!
As a mom, I have absolute admiration for you, having had to go through this with a child. I can be very good with medical things, but the Big C and my kid? Fall apart time. At some point.
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I’m so happy that we reached this point! But it’s still kind of scary not knowing what the future may hold. 😦 Especially when you read all the studies about how these kids end up with other cancers and health issues because of the chemo/rad and the statistics of how little funding pediatric cancer gets.
It was hard. But you manage to get through it…mostly because it is your kid and you have to rally for them. Sometimes in private you break down, but you are really too tired. If you get a private moment you pass out.
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